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Real Families, Real Stories, Real Success
Kaitlyn has a life-threatening peanut allergy that truly dictates every aspect of her daily life. Her allergy is so severe, that she will go into anaphylactic shock if she ingests even the smallest particle of a peanut. This includes ingesting any product that has been produced at a facility that also produces peanut products, being touched by someone who has recently eaten a peanut, and even airborne particles such as those recirculated in a commercial airplane. Daily life is hard, and arguably harder on a such a young girl of 11.
Kaitlyn has many limitations but is overcoming them with dignity and strength. She is taking action to change the way she lives her life. In March of 2015, Kaitlyn started peanut oral immunotherapy (OIT) treatment with Dr. Agrawal, with Freedom Allergy in Peachtree City, Georgia, in hopes that it will desensitize her immune system and potentially save her life.
OIT is a journey, it isn’t quick or easy. Kaitlyn had to put all of her fears aside and ingest the very food that she has been warned about her entire life. She was terrified at first and then slowly warmed to the idea of going in for the initial appointment. Dr. Agrawal was fabulous with her an… Read more
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At the age of 16 months, I fed my son half of a peanut butter and jelly sandwich. Within 20 minutes he was experiencing a full blown anaphylactic reaction. I did not know it at the time. Luckily, I took him to the emergency room at the hospital where they recognized right away from the massive facial swelling and the breathing difficulties what was happening. THREE doses of epinephrine and a few hours later, along with some other steroids, he lived. He had an overnight stay in the hospital so they could monitor him. It was determined that he had experienced a severe allergic reaction to peanuts. Our local allergist confirmed that diagnosis through both skin tests and blood tests. We were given a prescription for EpiPen Jr. (.15 mg) and told to have him avoid peanuts.
As I reflect on our journey through OIT, the famous quote from Nelson Mandela speaks volumes: “May your choices reflect your hopes, not your fears”. I think back to the night before my daughter began the biggest journey of her young life. Making the choice to purposely begin feeding her the very thing that could kill her. The fear was real. We had spent the past 7 1/2 years protecting and teaching this child to avoid peanuts and tree nuts at all costs.
I didn’t think it would be too hard to manage my younger son’s multiple food allergies. He would be safe if he only ate food that I provided and made for him, and I would be able to protect him from exposure or cross contamination if we avoided places or situations that may have his food allergens. However, as he grew older and more independent, I realized that it was harder than I thought. As kindergarten drew closer, I became more and more anxious – how could I protect him when he was at school, with kids eating peanut butter sandwiches, granola bars, and anything else that contained nuts? How could I trust others to look after him, and know the appropriate action to take if he had an anaphylactic reaction? We also found out my older son had developed a peanut allergy at that time. Our stress levels were through the roof!
I was first diagnosed with a peanut allergy as a small child. Growing up I had numerous accidental exposures that led to varied reactions including swollen lips, difficulty breathing, and vomiting. Many people with young children with food allergies often ask if I have ever had to use my EpiPen. I always tell them no, but I probably should have. I have only had one reaction as an adult due to strict avoidance but I did not like the limitations my food allergy had on my life.
My daughter is allergic to peanuts, cashews, and pistachios. She has a history of MANY anaphylactic reactions simply from touching a surface with residue, and one airborne reaction at a baseball game with peanut shell dust in the air. We took many precautions, but life was scary. I remember asking our beloved allergist about OIT, and he did not recommend it for her.
Fathers Day 2010: The day started pretty simply, I had made my husband two pb&j sandwiches for lunch. As he was eating and watching sports, I was playing “tea party” in the other room with our 18 month old daughter, Emersyn “Em”. As Em and I played she would bring “tea” out to her Dad to share. At one point Em reached for his sandwich and he pulled off a tiny piece of the crust and gave it to her. As soon as she ate it she started to cry hysterically. I went to her and she was pulling at her tongue and it looked as if she had been scratched from her cheeks to her lips. At that point we headed to the ER and put a call into her pcp. The on call Dr responded and asked if she was having a difficult time breathing. “No” was my answer. She had calmed and the streaks had lightened. We were advised not go to the ER, but to give her Benadryl, and watch her. Thankfully she did not have further symptoms that day.
We used to eat “may contain” products for several years, then I joined several Facebook food allergy groups and realized that I was in the minority.
I am here to offer you HOPE.FROM OUR OIT NEWS BLOG
Wall Street Journal Covers OIT in another story of success
The Wall Street Journal featured OIT/Oral Immunotherapy in a featured health column by By Sumathi Reddy. Three of our allergists, Dr. Factor of New England Food Allergy Treatment Center, Dr Wasserman of Dallas Allergy, and Dr. Mark Weinstein of NJ were interviewed with several parents and children. We even made it into the story: "A growing … [Read More Here]
US News & World Report OIT Story: New Peanut Therapy Alters DNA
New Peanut Therapy Alters DNA By Shannon Firth A new experimental therapy creates changes in the DNA expression of peanut allergy sufferers. Using blood tests and DNA sequencing technology, researchers at Stanford University were able to successfully predict which subjects with peanut allergies would react to a peanut test. At the end of 24 … [Read More Here]
Umer: Listing data to copy and paste in each doctor’s listing
Mercy Medical Group: Dr. Rubina Inamdar and Dr. Binita Mandal Windom Allergy: Dr. Hugh Windom and Dr. Jean Ly Kansas City Allergy and Asthma: Dr. Derrick Ward, Dr. James Sterner and Dr. Mark Neustrom Allergy, Asthma & Sinus Care Center: Dr. Manoj Warrier and Dr. Josie Vitale Bernstein Allergy: Dr. Jonathan Bernstein and Dr. Justin … [Read More Here]
National Institute of Health: “Oral Immunotherapy Is Safe, Effective Treatment for Peanut-Allergic Preschoolers”
For Immediate Release: Wednesday, Aug. 10, 2016 Oral Immunotherapy Is Safe, Effective Treatment for Peanut-Allergic Preschoolers, Study Suggests WHAT: Nearly 80 percent of peanut-allergic preschool children successfully incorporated peanut-containing foods into their diets after receiving peanut oral immunotherapy (OIT), a clinical trial has … [Read More Here]
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